One of the main missions of this site is to continue to present you with the various ways that you can pay it forward without opening your wallet. Did you know that you can do something right now, right this very minute, that can potentially save lives and it only takes sixty seconds of your time? It really is as simple as that.
You can pay it forward by enrolling in the Alzheimer’s Prevention Registry, whether or not you have a family member with dementia or Alzheimer’s disease. Only a tiny fraction of people who are diagnosed actually have a family history of the disease, which means that anyone can get it.
Though there is no family history of Alzheimer’s or dementia in my family this morning I took one minute (literally) to join the national Alzheimer’s Prevention Registry at http://endALZnow.org. How could I not join if it might help my community, my friends, my family or even possibly myself?
Alzheimer’s is a horribly devastating, debilitating and incurable disease that affects more than 5.4 million Americans. As if that is not enough, one new case is diagnosed every 69 seconds. With such incredibly high diagnosis rates, by 2030 the number of people in this country alone with Alzheimer’s disease could exceed 7.7 million.
The registry will be used to recruit people for research studies. After registering, you will will periodically receive electronic newsletters and opportunities to learn about research studies for which you may be eligible. On occasion, the registry also will reach out through brief online surveys about Alzheimer’s. These will take less than 10 minutes to complete. You are under no obligation to take part in prevention studies or research trials. You may be notified of opportunities but it is entirely up to you whether to participate. The registry is open to anyone age 18 and older. Your personal information will never be shared without your approval and it will only be used to connect you with relevant prevention studies.
Please consider joining the Registry. Let’s help put and end to Alzheimer’s disease.
• Alzheimer’s is the sixth-leading cause of death in the United States and the only cause of death among the top 10 that cannot be prevented, slowed or cured.
• Alzheimer’s is the most common form of dementia. It is not a normal part of aging, although the greatest known risk factor is increasing age.
• Approximately 5.4 million Americans are living with Alzheimer’s today, with one new case diagnosed every 69 seconds.
• One in eight Americans over age 65—and nearly one in two Americans over age 85—is currently diagnosed with Alzheimer’s.
• The prevalence of Alzheimer’s is projected to increase sharply in coming decades because of the nation’s aging population. By 2030, the number of cases could exceed 7.7 million.
• One in 10 adults is responsible for providing or arranging care for a relative or friend with the disease.
• In 2012, the direct costs of caring for Americans with Alzheimer’s disease or other dementias are expected to be $200 billion, including $140 billion in costs to Medicare and Medicaid.
• Unless effective treatments are found, these costs are projected to soar to $1.1 trillion (in today’s dollars) by 2050. This dramatic increase would include a 500% increase in combined Medicare and Medicaid spending.
Disclosure: I am so proud to have had the opportunity to learn more about Alzheimer’s and encourage readers to begin a member of the Alzheimer’s Prevention Registry. I was compensated for writing this post. The sources for the statistics above are from a 2012 national survey for Banner Alzheimer’s Institute by Edge Research. The prevalence and cost data are courtesy of the Alzheimer’s Association.